Getting a linux laptop as a non-computer expert. What if you’re really sick of Apple and Microsoft?

So after my laptop was stolen, I was in the market for a new laptop. Should I get a second hand one? (painful as I had just lost one! Probably someone else is buying my second hand laptop as we speak).

Should I even get a desktop? But I do like reading webcomics working on the sofa, or on the train, or anywhere, so a laptop it was.

Should I get a Mac or a PC? Unfortunately, I have completely bought in to all that stupid advertising that makes Apples seem cool and better, and they are pretty glossy. Plus, I always wanted a Macbook Air and that is now the basic version.

But I don’t feel Apple has any good options. I paid £1000 for a PowerBook four years ago, but now they cost £1200 because they are the better version while the Macbook air is the basic version, but because that’s solid state memory, I have to pay extra just to have the same amount of memory (which to be fair is plenty, and nobody even quotes the memory anymore, but I grew up in an era when more memory was cool. When my first laptop had 40GB storage, that was a big deal and my friends were impressed [one friend]. It’s quite funny to root around in my brain and see where this idea, that more memory is cool, comes from).

At least the Mac book Air has a few ports, but the Powerbook only has the new USB3 ports. I’d say power, headphones, two USB-normal ports and one thingy to plug in a screen or projector (HDMI or VGA) is the minimum a laptop should have. Apple computers do not provide this, so I’d have to spend money on adaptor cables (And then I’d have to store, them! It’s just more stuff to keep track of, they wouldn’t bring me any joy. Marie Kondo should give Apple a good talking to). Meantime my basic work PC laptop has got millions of ports. And no laptop has a DVD player anymore, which is quite annoying. I really had thought laptops were supposed to be getting better and cheaper, but I don’t get to even pick one. They are just getting more expensive and have less stuff. When are the economies of a mature technology going to kick in?

So having had PC’s at work all my (working) life and as I prefer Microsoft excel on a PC I did look into buying a PC, but I already had the Mac version of Microsoft Office software paid for (the thieves didn’t take the piece of paper the the licence was printed on so that was still mine). Meantime it currently costs £120 for a PC, so as the nicer laptops were not that far below the MacBook Air, I thought I could stretch to an Airbook (anybody who thinks I am wasting my money on a pointless glossy status symbol is right. Macs are so nice and glossy).

So, standing in the shop, just before I bought my nice shiny MacBook Air that I always wanted, I had one last question. Of course, the most widespread software in the world, Microsoft Office, that I only bought four years ago, is still supported isn’t it?

No. No it is not. New Microsoft Office software is £240. More than double what I paid in 2014, when it was £108. Apple is dead to me. I mean maybe this is not all Apple’s fault and it’s equally Microsoft’s fault. They’re dead to me too. Damn their rent seeking monopoly based business models.

So is there any way to opt out? Obviously, I’ve heard of linux, but I’m not an expert, I don’t want to spend time and effort and make my laptop my hobby, I just want a box, small enough to travel, with a big enough screen to work on, with a browser, and email and file storage (so I can scan all my papers and chuck them as they don’t bring any joy). Also some degree of a glossy status symbol! (It’s ridiculous, but there it is).

So I googled linux laptops (there are only a few out there). I.e. a laptop that works out of the box, no more different from an Apple/PC than they are from each other, and landed on Purism. The 13″ one is the same price as a PowerBook, or a MacBookAir plus Microsoft Office. The big, big, BIG selling point is that they will not spy on you and all their software is open source and verifiable by third parties. I remember how betrayed I felt when I realised that the Mac address book tool, that I’ve been filling in with data on my friends since I bought my very first laptop, is now imported onto your phone and freely available for any app to help themselves to. And you can’t export it to an excel spreadsheet (I did export some sort of wall of text version) and you can’t even delete people on your phone wholesale, you have to delete each person one by one! It was exhaustingly tedious.

Purism talk about how they are making their computers as secure as humanly possible and they won’t spy on you ever. And they can’t sell your data as they don’t collect it in the first place. Not having all my data sold to companies who want to use it to exploit me, is quite a nice feature in a laptop. As a tiny company producing laptops for the same price as Apple one of the biggest manufacturers in the world, that really seems like they might break open Apple’s stupid monopoly (which this blog should show: that monopoly is partly powered by my own brain).

Purism looks pretty good, I haven’t researched their claims properly, just the bits where they say it’s a laptop that works, and it isn’t a Mac or a PC, and it has a free version of Office. I never wanted to learn to use the apple equivalents, but I’m willing to put the effort in for a good cause this time.

So speaking of status symbols, that whole ‘being part of a movement’ idea is good enough for me. I’m assuming the actual laptop won’t be quite as smoothly glossy as a Mac, it does look fairly glossy, and I’m pretty sure the power cable will be hideous, but I’m part of a movement, and the computer won’t spy on me. And it won’t default to google which definitely does spy on me. Plus all the free software sounds good, there seems to be a free version of photoshop which is certainly better than the nothing I have now, (I used to have photoshop at work so I did miss not having any useful image manipulating tools).

I have to say, this is a bit of a leap of faith. I don’t think their online order form really speaks to the non-expert buyer (me) who has no clue which sort of memory to buy: M.2 SSD vs 2.5” SATA 3SSD (I looked it up, but I’ve forgotten. If you don’t know the difference, it means you’ll be fine with the default one, but they should still define their acronyms).

It’s not heavy-handed symbolism. It’s Art.
Harold E. Edgerton, 1964, Smithsonian American Art Museum

So see my next post on how to order from the US to the UK, what fees and charges you need to pay, how do you pay VAT at customs, after I’ve gone through it and figured it out. Then we’ll find out if the normal, non-expert computer user (me) can use a Linux laptop.

New year, new energy, Some ideas for resolutions

New Year, new energy, I do like the start of the year (there just might be a link to all the time off I had at Christmas and New years).

I was thinking about some ideas for changes you could make if you were thinking of New Years resolutions. And  if you think the new year is an arbitrary time of year then, good news! you can also read this blog post at any other time.

  • Having decided the ‘rules’ you want to live by: think how mindfully achieving your aims and having a sense of agency is better than, say, the monkey brain enjoyment of a cheap supermarket cake that doesn’t even taste that good.
  • Enjoy mindfully planned exceptions. It’s not about never having treats. Plan your exceptions by imagining you are in the future looking back and decide if you think it would make you more or less happy to indulge. Then later actually look back and decide if you were right or not and what you will choose to do if the same choice comes up in the future.
  • Be fair on yourself. If you skip lunch and get hungry you will crave snacks and chocolate before you become consciously ‘hungry’ (I certainly do, I get a good 30-60 min phase of thinking about chocolate before I ever feel consciously hungry). If you find yourself eating junk food, think whether the junk food is the problem or if the previous meal was the problem. Look out for yourself. If you were looking after a five year old child you wouldn’t be too busy to get them a proper lunch and you’d get them home in time for a proper supper.
  • Swap to full fat milk, yogurt, etc.
    The fat will increase satiety in good proportion to the amount of extra calories, leading to more fullness and less need to snack.
  • Swap starchy foods for half the amount of fat.
    Halve your rice and put a quarter the amount of butter or olive oil on top. The same calories but more delicious and you’ll feel fuller.
    Highly processed starchy foods, like bread and cereals, crisps and popcorn and rice, will spike your blood sugar up and the resulting drop will make you feel hungry. Half the amount of fat will have the same calories, will keep you nice and full and will keep your blood sugar on a comfortable, controlled, even keel.
  • Alternate every glass of wine with water.If you are out a party and if you like drinking all the time, instead of trying to drink less, substitute what you drink. My favourite is apple-shorle. A little apple juice with sparkling water. The nudge unit (in David Halperns book) has advised for ecigs purely on the basis that a substitution is so much easier than quitting (and ecigs really are so much safer than cigarettes, though that is the lowest bar ever).
  • Substitute fizzy drinks with sparkling water with a dash of lemon and/or lime, or even just plain sparkling water. Obviously if I have a choice of sparkling water or coke, my monkey brain will prefer the coke. But you could reframe it as nothing vs a drink. Sparkling water is much more fun than nothing.
  • Consider drinking your coffee black, then it’s zero calories, but apparently it still has soluble fibre. Practically good for you, or actually good for you, who knows. Who cares! Coffee is delicious.
  • Substitute breakfast cereal with fried eggs, or boiled eggs if time is tight.
    Again this gets you away from the highly processed, empty calories in the processed wheat/maize (which is what every single cereal is apart from oats, and swaps in a vitamin rich food with the full range of essential fatty acids and essential amino acids). In case you didn’t get the memo, we’re not worried about dietary cholesterol anymore (I wish there was an actual memo, or people admitting that the old advice was wrong and presenting the reasons for the old advice and the reasons for the new advice. Let me know if you know find that).
  • Only eat cakes/chocolate when out with friends, never snack alone.
  • Quit all snacks. Eat three meals a day and that’s it.
    Saves time and thought. If you can’t go between meals without feeling hungry you are doing your meals wrong.
  • Mindfully discuss a desired habit change with a friend.
    • Figure out the problem (for example: I have lunch at 12, I work till 7, when I get hungry and there is only vending machine food available and I don’t want to spend time and energy on bringing cooked food in, also I only sometimes get hungry so I can’t bring in perishable food, as it would get wasted).
    • Discuss a range of solutions, when the first three ideas aren’t a good fit keep discussing ideas.
    • Answer: Ryvita and babybel.
  • One day go to the supermarket before supper. The next day eat a really good supper then go to the supermarket. Watch yourself glide paste those donuts on sale, with no difficulty. Everyone always said you shouldn’t shop on an empty stomach but when I did this experiment, pretty much by chance, I was really surprised at how strong an effect it was.
  • Only enjoy sweet foods and drinks as a dessert on a full stomach.
    Sugary drinks, including orange juice and fruit smoothies, will give you a massive sugar spike. Avoid the spike by only eating sweets on a full stomach.
  • Swap white for green
    Instead of boiling up pasta, what about boiling some frozen green beans to have with your sauce.
    The Swiss food pyramid caps starchy carbs at 3x 30-50g a day (p19). That’s three small slices of bread or three very small helpings of pasta per day. Replace white, nutritionally empty carbs with green vegetables (still 80% carbs which are slow release with some plant protein (not nutritionally complete without complicated mixing and matching, but still useful) and the water-soluble vitamins).

There we go: a few ideas for changing habits and some ideas for what habits you could change. Hope some of them are useful and spark some further ideas of your own. Have a happy year.

Obesity 50 years ago when the medical advice was to cut the carbs

For Obesity Day I thought I’d quote the advice Gary Taubes describes as treatment for obesity in the 1950s.

So seven prominent British clinicians, led by Raymond Greene, published The Practise of Endocrinology in 1951:

Foods to be avoided

  1. Bread and everything else made with flour
  2. Cereals, including breakfast cereals and milk puddings
  3. Potatoes and all other white root vegetables
  4. Food containing much sugar
  5. All sweets

Foods to be embraced

  1. Meat, fish and birds
  2. All green vegetables
  3. Eggs, dried or fresh (do dried eggs even exist anymore?)
  4. Cheese
  5. Fruit if unsweetened or sweetened with saccharin, except bananas and grapes.

In 1940 a monograph on 50 obese patients found that 41 of them had a “more or less marked preference for starchy and sweet foods; only one patient claimed preference for fatty foods” these patients included “an extremely obese launderers [who had] a craving for laundry starch which she used to eat by the handful, as much as a pound a day…”

When you make the low fat version of food you can do so by adding starch, e.g. Morrison low fat Crème Fraîche has tapioca starch added.

Or in the 1960s textbook on Human Nutrition and Dietetics Sir Stanley Davidson and Reginald Passmore wrote “In great Britain obesity is probably more common among poor women than among the rich [today it definitely is] perhaps because food rich in fat and protein which satisfy appetite more readily than carbohydrate are more expensive than the starchy foods which provide the bulk of cheap meals”. And “All popular ‘slimming regimes’ involve a restriction in dietary carbohydrate”. “The intake of foods rich in carbohydrate should be drastically reduced since overindulgence in such foods is the most common cause of obesity”

50 million copies of Dr Spock’s book said “Rich desserts , the amount of plain, starchy foods (cereals, bread, potatoes) taken is what determines, in the case of most people, how much [weight] they gain or lose”.

And look at Ancel Keys’ observation of the people of Naples eating the Mediterranean diet (though it was the Cretans that were the long lived ones), he describes the small amount of lean meat and the pasta based dishes (a poor region, made even poorer by the war) “The women were fat”. (Ancel Keys was one of the key scientists arguing that saturated fat caused heart disease).

So a low carb high fat (higher fat than we eat now) was fairly standard diet advice in the 1960s. Since then the idea that fat is bad is because saturated fat was bad, and because there was some evidence that diets extremely low in fat  produced really good results in terms of weight loss, for patients coming off junk food  diets (but we’re talking less than 10% fat with no word on whether those are the only good diets). Those diets were studied by Pritikin and they were what inspired George McGovern when he recommended around a 30% fat diet in the Dietary Goals for the United Stats. 30% fat is the current UK recommendation, though the US has now taken the fat limit off.

You can see some of the confusion here by comparing the UK, the Harvard and the Swiss food plates or pyramids.

2016_uk_eatwellguide harvard-pyramid-jan2015-1024x808 harvard-food-pyramid-1024x950swiss-food-pyramid_2011

The UK Eatwell Guide is 1/3 carbs and, whatever they say about wholewheat, the pictures are all of highly refined carbohydrates, while in the Harvard food plate whole grains (no processed refined carbs) are 1/4 of the plate. In the Harvard pyramid cheese is in the second smallest category, but in Switzerland it’s one rank down in the middle of the pyramid (quite amusing). Both Harvard and Switzerland pyramids allow more oil than the UK and they disagree about how much.

The thing that strikes, me looking at my friends lunch, is how many of them consist of even more than 1/3 carbohydrate. A sandwich is probably around 2/3 bread (carbs) vs filling, or call it half. Then add a bag of crisps, 50% of the calories are carbs, (more than 50% of the weight that’s not water). Then throw in a banana, again as a % of calories thats 92% carbohydrate. E voila, you’re eating way more carbs than are recommended by the UK, and even that is probably too much.

The other thing that really struck me was reading Weston Prices’s description of diets around the world.
I want to go into this properly in another post, but briefly, he was a dentist who, in the 1930s, did a tour of the worlds teeth comparing ‘native’ diets of people not in contact with Western civilisation, with the teeth of the same ‘tribe’ of people who were. This includes the Swiss comparing a distant valley, Loetschental, with the lowlands, St Gallen, and the Western Isle in Scotland comparing the side of the island with a port and shop with the other side of the island, as well as the Inuit, Native Americans, Aborigines, etc. etc. etc. In every case the ‘native’ diet produced wonderful straight, healthy teeth while the Western diet didn’t. Indeed we’re talking, all your teeth rotting out of your head by the time you’re 20 (and my Swiss grandmother only had four teeth). In every case the major feature of the Western diet was white flour and sugar. These people were eating an utterly terrible diet by any standard (no wonder TB was so rampant in the olden days). Western Price’s main idea was that these people weren’t getting the fat soluble vitamins, A, D and K2 needed for healthy teeth. Also they weren’t getting any other vitamins either (but when he gave them a small amount of top quality butter their teeth got better so it seems it is the A, D, and K2 for teeth).

So this is a second argument to reduce easily digested white carbohydrates, that used to be known as uniquely fattening. They are entirely empty calories. If we are sedentary and living in heated homes, we don’t need to eat so many calories, which means the food we do eat needs to be better quality to get enough vitamins, minerals, fibre etc.

The final thing, that I’ll try to mention even more briefly before the blog post: What if vitamins A, D and K2 (which need to work together, no point only getting one or two) are so essential for calcium metabolism (as well as teeth) that if we don’t have enough vitamins we have calcium filling up our arteries and becoming atherosclerotic plaques (Atul Gawande described such arteries as being brittle to the touch when he operated on them). What if all of our heart disease is vitamin deficiency? This deserves it’s own blog post. But what if a trivitamin pill could help enormously and saturated fat had nothing to do with it?

So for world obesity day, and to save the NHS, make an effort to swap out your bread, pasta, potatos, polished rice and crisps for vegetables, an egg and a bit of cheese.

 

How to decide a moral dilemma

I was at a Gresham Lecture yesterday, To Die or not to Die (whether ’tis nobler in the mind to suffer the slung arrows of outrageous fortune, or to take arms against a sea of troubles…). The speaker was Sir Allan Ward a judge with a 60 year career behind him who is now retired with time to give interesting talks.

He started by saying how awful the death penalty is and described two of the prisoners he had met in South Africa who had completely crumpled and been destroyed just by the sentence, even before the actual execution. This was moving, but also, in the UK, safely dated, we have gotten rid of the death penalty now because we all agree it’s bad. This was the jumping off point though, he had thought he would never have to deal with life and death issues again, but they do still exist.

The first story was about a 16 year old Jehova’s witness, who, with his parents, didn’t want a life saving blood transfusion as part of his treatment for leukaemia. The doctors did want him to have the life saving blood transfusion so the case came to court. In some ways it seems like a no-brainer to say of course the child should be ‘forced’ to have the blood transfusion, However, Sir Allan went to visit the boy in hospital, made sure the 16 year old understood the risks and issues, and discussed and listened for some hours. He also wanted to make sure that if he judged  that the child should have the treatment, the boy would accept the judgement and not try ripping the tubes out. Indeed he argued that because the decision had come to him, the judge, this was the heavenly equivalent of a sick note that he could hand over to St Peter at the pearly gates to excuse his sin (I’ve deliberately left the quote marks off there). So when he left the hospital and wrote up the brief on Friday night, the appeals court were all ready and set for the appeal. But there wasn’t one. The family’s solicitor, himself a Jehovah’s Witness, said they had planned to appeal because they had thought their opinion would be dismissed, but when their views and values were taken seriously and listened to, even if ultimately the judge didn’t agree, they were satisfied.

However, there was a sober epilogue. The leukaemia returned 10 years later, and as an adult he refused a transfusion and did die. So the judgement gave him a decade, but ultimately didn’t save him. It seems to me that the boy might have felt that an external court could override him as a child, but as an adult man, his path was clearly to stick with the tenets of his religion.

The second story was the longest and concerned conjoined twins. The parents came from a small village in Malta which has an agreement with the NHS that their complex cases can come here for treatment. You probably heard about it at the time, the twins were Jodie and Mary (not their real names).

The twins were joined up around their tummies with their legs sort of stuck out at the sides and grown all wrong, it did look quite bad. Indeed, very understandably, it took the mother days to be able to be in the same room with them and  to touch them.

Jodie was well but Mary was brain damaged. Jodie’s heart was beating for Mary which doctors suggested was equivalent to her little baby heart pumping blood round a 10 foot tall person. The doctors thought they could save Jodie and carry out complex surgery to give her a healthy normal body. Mary would have to die. I did think this moral dilemma was somewhat reduced by the possibility that Jodies heart could fail under the double strain and they could both die. It seems then it’s choice of saving one instead of none. However, in this or another case it might be that Jodies heart would  grow strong and they could both live, though with a limited quality of life and being bed bound.

So the parents thought they should wait things out and if the babies died that was God’s will, while the doctors were sure they could save Jodie. A very cynical person might wonder if some parents might prefer a dead child to a severely handicapped child and might wonder if this influenced the parent’s feeling that Mary should not be sacrificed (though the doctors were confident Jodie would be healthy, the parents were not so sure).

So it came to court. Three days in Sir Allan raised a further point: if the doctors take up a scalpel to separate the twins and save Jody, but knowingly kill Mary, is that murder?

This could have been argued very differently a century ago. Murder involves killing a ‘rational human’ i.e. I guess killing animals is ok. So was Mary a rational human? Her brain damage would, a century ago, have disqualified her as a ‘monstrous birth’. Perhaps it might then have been perfectly ok to let her go quietly, and maybe even to help her along. Nowadays it was quickly agreed that Mary’s brain damage didn’t apply and she definitely counted as a rational human.

So having described this much, I’d like to stop discussing the actual case, take a step back, and say, I think it’s quite right for the state, for the taxpayer, indirectly for us, to take this time and effort and money to discuss these cases and go into the issues. For example, far better to get into the issues of whether the operation is murder or not before hand, so you can figure it out without any doctor having to sit in the dock and wonder if he will wind up in prison (in the end they decided that because Mary was such a drain on Jodie, and could kill her, it was ‘self defence’ for Jody to be separated and the doctors were acting as a proxy for Jody’s self defence). And after all, if the taxpayer spends a fortune in wages, you do get 20-40% of that right back.

Michael Sandal argued at the end of one of his books on ethics, that when you have a knotty, thorny ethical dilemma, perhaps the exact decision you reach is not the most important thing. The whole point of a difficult choice is that there are arguments either way and that perhaps the most important thing is to honour the difficulty with thought, attention, time and effort. You must think carefully every which way, but ultimately there might not be a clearly right or wrong answer. He illustrated this with two men who each had  brother who had committed murder and might do so again. Ultimately one man dobbed his brother in, while the other refused to do so. In the end you could agree with both men.

However, Sir Allan argued this was not exactly the case for Jody and Mary. The question was not what was moral, the question was, what was legal. And he raised this again in a question at the end. Currently assisting suicide is illegal so if someone brings their wife to a Dignitas clinic in Switzerland, this is illegal, even if we all agree the law needs to be changed (and clearly we don’t all agree otherwise we would change it).

I did wonder about all the cases we never hear about because the parents and doctors agree. If the doctors had just gone ahead without any court cases, would they maybe have been up for possible murder (even if Mary’s death turned out to be indirect self defence) or would nobody have thought to raise the issue?

The difference between law and morals also comes out very well in this paper: No Child Left Alone, about mothers and father who leave their children alone. Surprisingly, it is actually readable, even though it’s science! But don’t worry, no children where harmed in the making of this science. The children were only left alone in scenarios that were read and graded by amazon Mechanical Turk (what a brilliant way to get research subjects). The authors, Ashley Thomas et al., conclude that in the US today there is a new moral code and it’s totally immoral to take your eyes off your child for even five minutes, even when the risk of kidnapping/murder is around 0.0007% or 1/1.4 million a year (fairly low) and that when police were called out to bring two lone children home, the kids were more at risk being driven in the car than they had been walking home alone (with the permission of their parents). This even comes up in Patrick Ness’s new novel More Than This. Two brothers are left home alone for a short time, in those few minutes an escaped prisoner pops by and something terrible happens to the younger brother. The parents then spend the next 10 years blaming the older brother, who was eight at the time. The older brother discusses it twice, and both friends are assure him he was not at fault (obviously) but they are entirely happy to throw all the blame on the mother while ignoring the actual person who committed the terrible crime. That was a bit annoying.

The last author of no Child Left Alone, Barbara Sarnecka, concluded that their findings “should caution those who make and enforce the law to distinguish evidence-based and rational assessments of risk to children from intuitive moral judgments about parents — and to avoid investing the latter with the force of law.”  So leaving your children alone in sensible circumstances (not neglect) is now immoral, but should not be made illegal.

Phew that was a lot of thought from one lecture. I’m looking forward to more of these.

1 year cancer survival: is your cancer more important than your hospital?

Nowadays quite a few health statistics are published online. Here I’ve got some graphs on some cancer stats published this year. The stats take a while to collect so we are only just onto the 2014 data (in the perfect world hospitals would submit a months stats the next month so the annual data could be published by the end of February. We are not living in that world yet. Also we wouldn’t get sick in the first place in that world, which is why it would be so easy to submit the stats).

This set of stats is pretty detailed, it lists the number of patients with each of the ‘big 13’ cancers, at  stages 1, 2, 3, 4 or unknown for each CGG  (clinical commissioning group) in England. Stage 1 is early and good, stage 4 is late and bad. The 1 year survival for the ‘big three’ (breast, bowel and lung) has also been published for each CCG (the % of patients diagnosed in 2013 who were still alive at the end of 2014). It’s interesting to compare these two dimensions by graphing early stage of diagnosis (by adding up all the patients diagnosed in 2013 and 2014, except three cancers are new with only one year of data) against 1 year survival for each cancer for each CCG.

compare-early-diagnosis-with-1-year-survival

I find it pretty interesting that three such distinct clusters just fall out of the data.

In the bottom left is lung cancer. This unfortunately has very bad early diagnosis with only 14-37% of patients diagnosed with stage 1 or 2 and equally bad 1 year survival. Of all the patients diagnosed in 2013 only 24-47% where alive at the end of 2014, depending on where in England they were.

Colorectal is intermediate, 30-57% of patients are diagnosed at stage 1 or 2 and 68-85% were still alive at the end of 2014.

Breast is best with 72-96% of patients are diagnosed at stage 1 or 2 and 93-97% were still alive at the end of 2014.

I think it’s interesting because the variation across the two dimensions for all the CCGs (each dot in each group) is smaller than the variation between the different cancers (the space between the groups). So which cancer you get will affect you more than any variation that exists around the country. Bear in mind that differences between CCGs, might be due to something about diagnosis/treatment OR they might be due something about the population. Deprivation definitely plays a role, for example deprived areas have a much lower screening, which will reduce early diagnosis. So do the graphs show variation in treatment or variation in populations? This isn’t exactly about lifestyle factors. If you smoke a lot, your odds of getting lung cancer are higher, but what determines whether you are diagnosed at stage 1 or 4? What determines how long you have after that diagnosis?

While we can’t do a similar graph for any other cancers, as 1 year survival is only published for ‘all’ and ‘the big three’, we can look at early diagnosis for the next ten most common cancers.

The same data is shown two ways. The first graph on the left shows the early diagnosis for each cancer lined up by CCG. The second shows each cancer lined up by percentage.

early-diagnosis-2013-14

Looking at the first graph you can see that there isn’t much of a pattern, a CCG that has early diagnosis in one cancer has late diagnosis of another. Even if you can’t see that by eye, when you measure the correlations the surprising thing is that virtually nothing correlates with anything else. Of all of the 10 cancers shown, early diagnosis in one cancer in one place doesn’t predict early or late diagnosis in any other cancer (there are a few weak, correlations, but we can round that down to ‘nothing’). The next thing, shown more clearly in the second graph where each cancer is lined up in size order, is that while there is quite a range in the percentage of patients diagnosed early each cancer still has it’s own pattern. Melanoma is best then I’ve listed them in early diagnosis order on the graph.

Lots of things go into early diagnosis. Obviously it’s easier to spot stuff happening to your skin than to an organ buried in a bony cage, which is why melanoma is top of the list for early diagnosis and lung is near the bottom (though not in the same graph). So part of it will be your whether or not you have symptoms, then spotting those symptoms, going in to the GP, or screening to catch things before they start to produce symptoms…

Coming up to the end of the blog post, I’d like to close on the answer to all this variation, ideally with a few simple bullet points that would totally fix the problem. But unfortunately I’m all out of simple answers today (get changes in your body checked out? watch out for random bleeding? spend more money on the NHS?) It’s not that I don’t believe in simple answers, I just don’t have one here. Still if I haven’t got any good answers, hopefully it’s at least a good question.

Fancy meeting you here

It’s quite fun when two completely random books you’re reading happen to match up perfectly.

I’ve slowly been reading Edward Tufts’ Envisioning Information. One of the infographics describes “The slow, costly death of Mrs K”. (I wouldn’t have thought it was an infographic as it is also a wall of text).

The Slow, Costly Death of Mrs K__ ICUpsych

The case is described in Clinical Bioethics,  she lies in intensive care, being poked and prodded, so she can lie in comatose suffering for a month never recovering and so far as I can see, with no hope of recovering. None of those treatments prolonged her life meaningfully, or gave her a better death, however she might have defined that.

And this is half of what Atul Gawande’s book, Being Mortal is all about (because the ‘some doctors questioning the practice’ in 1984 evidently didn’t have much influence. Hopefully writing a best selling book questioning the practice will have more luck).

The first half is elderly care, equally fascinating, and very current for our aging populations. However it was the end of life care that I found most fascinating.

Atul highlights the difference good end of life care can make comparing two cancer patients and also his own Dad who had cancer, and how important it is to ask the patient the difficult questions and make it clear if they are up against a rock and a hard place. Not a rock and a cure.

He compares the two surgeons who advised his Dad on the rare spinal tumour that was squashing his spine and causing pain and paralysis. One surgeon advised instant action because he could be paralysed any minute and the surgery could cure him. The other surgeon pointed out that the surgery could equally maim or kill him and that these cancers usually grow quite slowly so he should hold out until the current pain and paralysis was intolerable enough that the risks of the surgery became more acceptable.  And the tumour was slow growing and Dr Gawande had two or three years of good life and good work (very important to him) before the surgery. In hindsight the operation went well and he had some more years after that, but that could never have been guaranteed.

Atul also told the story of two cancer patients, and how hospice care, provided in addition to normal cancer care, can actually prolong life (shown to be the case in the US). Part of the benefit was that the palliative care team could train the patient and their family in simple medical procedures so when the inevitable next step came along, they were prepared, knew what to do, had the medication to hand, and could cope. When the second patient became very breathless, without the hospice care they didn’t have oxygen at home, or the training in what to do, so they rushed into hospital where she was put her on as many machines as possible, leaving it to the family to decide when it was time to unplug her and denying her the the death at home she had wished for.

Atul also describes two such home deaths, of his father and of a patient, where, by fully understanding her wishes, he had carried out a much smaller scale surgery than he might normally have done so she was well enough to go home.

In order to fully understand the patients wishes you need to ask the right questions and Atul spelled out what he learnt (here it is in checklist form).

When you want to open up the conversation say: “I’m worried”. Then ask at each stage

  • “What is your understanding of the situation and it’s potential outcomes?
  • What are your fears and what are your hopes?
  • What are the trade-offs you are willing to make and not willing to make?
  • And what is the course of action that best serves this understanding?”

Sitting here writing/reading a blog you can see that these are incredibly easy questions to write down/read out. Applying them in real life probably takes a bit more practice. Indeed Atul was inspired to make the effort after remembering some pretty gruesome ‘wrong’ decisions made by patients who might have mistakenly thought the huge surgery would ‘save’ them rather than ‘give them back bladder control for the last few weeks of life’.

In Almodovar’s All about my Mother we see the Spanish doctors go through quite a lot of training on how to ask family to donate the organs of their loved ones. The people playing the family members think up lots of difficult, and racist, questions to train the doctors.

These are also questions any family member can ask. One story concerned someone who, despite working in this field nearly couldn’t have this conversation with her own Dad. On the way home she realised her mistake and went back to ask him, ‘what is the most important thing for you now’. He replied that as long as he could watch sport on telly and eat ice-cream, life still had meaning for him. When he was in the middle of surgery and the doctor asked the daughter what they should do, she know what the criteria were. If it goes wrong will he still be able to watch telly and eat ice-cream … ?

 

It’s too hard, just don’t bother

I was just reading Walter Mischel’s book on Willpower, The Marshmallow Test. He’s the one who invented the test and they also did loads of work on how children could increase or decrease their waiting times (it wan’t always a literal marshmallow, but that’s the shorthand he uses).

I’ll outline the test here. The child is seated in an empty, dull room, In front of them is the marshmallow to resist and the two marshmallows they can get if they do resist. To get the single marshmallow now they have to ring a bell to call back the researcher and they’ve been shown the researcher will return the second they ring the bell.

Then they did all kinds of variations to see what would help or hinder willpower. Obviously putting the marshmallows out of sight helped, but another experiment showed that is only obvious for older kids, if you asked the medium kids they thought it would help to be looking at them (it didn’t) and the little kids didn’t understand the question. The sweetest story was a little girl who worked so hard to resist the one cookie to get two, that she then didn’t eat those two at all, but waited even longer to take them home to show her mum what she’d achieved. Further experiments did indeed show that if we reframe the temptation (including literally putting a frame around it and pretending it’s a picture) it can help.

Mischell also discusses how temptation can be modified by your motivation. This part is reassuring as he questions Tierneys experiments that show willpower is depletable and depends on blood sugar. He argues that their students were just bored by the second willpower test, and that if we believe willpower is depletable it is more depletable than if we believe it is an infinite (like Gretchen Rubin’s short story about horseshoes bringing luck even if you don’t believe in them).

The example Mischel gives from his own life was the one that surprised me most. He got symptoms went to the doctor, was diagnosed with celiacs and given a pill. That seemed odd as I didn’t know there was a pill for it. Months later he found out in the library (before the days of google and wikipedia) that celiacs was caused by gluten intolerance. Asking his doctor why he didn’t tell him the cause and why he didn’t just give up gluten the doctor replied, Nobody has the self-control needed to stay on a gluten-free diet in a gluten-filled world, so there was no point talking about it (the pill could alleviate the symptoms a bit but had it’s own, possibly serious, side-effects). Needless to say plenty of people, including Mischel, manage this nowadays. They resist temptation by the cognitive reframing that makes gluten a poison (helped a lot by the fairly immediate crippling stomach pains).

It was quite surprising that the doctor had such low expectations of what the patient could achieve, naturally if you don’t even try, you will achieve even less. And I think this shows that we can achieve much bigger changes than you might think as long as you are convinced enough.

poison-cupcakes

I’m gonna live forever (till 90)

ONS has taken their population predictions, allowed you enter your date of birth and gender and they can tell you how long you get to live. Pretty neat. Also much better than the one in Series Two from the IT crowd. Though that one took into account how many portions of veg you ate the ONS one gives you better numbers (more than a week).

A life expectancy of 90

ONS is giving me 90 years, while my grandmother lived to 92. I thought this was part of my generation being the first to not live longer than the previous one due to our terrible obesity epidemic, but the odd thing is that I get a better life expectancy than my mother, and nearly double her odds of living to a 100.

So wow. 90 years! I feel a bit like Artie in Narbonic.

Narbonic Six Months to Live

(Artie was originally a gerbil with a normal gerbil lifespan before Helen decided he could better carry out dashing rescues if he was bit bigger).

ONS is mainly motivated by showing you how much you need to save up for your pension (and probably preparing us for the inevitable moving back of state pensionable ages).

This was also a theme in Patrick Susskind’s Parfume. (I can’t remember if it made it into the film as a theme, and I think they skipped his childhood anyway). The theme was that everyone who had any long-term contact with the Grenouille (the protagonist) died a miserable death (but randomly, due to fate or magic realism. He did go round killing people, but that’s another theme). In his early years he was brought up quite neglected with not enough food or warm clothes (as I recall). This was because the woman who brought him up at a sort of private orphanage skimped on the children to save the money she was given for them for her old age, but she lived and lived and lived, so she did die in public hospital sharing a bed with someone else and was buried in a mass grave, her greatest fear.

So, um, better start saving, but index funds only!

Build character, without doing something you hate.

I was just reading Willpower by Baumeister and Tierney, which I enjoyed a lot. For some reason I had very good willpower while I was reading it. They take the idea that intelligence is supposed to be a good thing in life, but that actually ‘resisting the marshmallow’ or willpower also has a really strong correlation with ‘success’ (listed in the link). And that willpower is much more amenable to practise.

They point out that ‘willpower’ is the same thing you use for decision making and resisting impulses and we have limited supplies of the stuff. So starting 10 new years resolutions, that each require willpower, is impossibly hard. Do one at a time. They describe Franklin, who helped inspire Gretchen Rubin’s approach to her happiness project. He had a list of 13 values and each week he’d focus on one, slipping behind in the one he’d done in the previous week, but hopefully doing two steps forward in each focus week and only one step back in between, so that:

“On the whole, tho’ I never arrived at the Perfection I had been so ambitious of obtaining, but fell far short of it, yet as I was, by the Endeavor, a better and a happier Man than I otherwise should have been if I had not attempted it”.

The funny thing is that the recommendations end up really supporting religion. Lots of religious practices, meditating every day, praying every day, praying five time a day all add up to practising willpower. It seems that anything you do because it’s the right thing to do, whether or not you feel like it, is practising willpower. Or you could say that because you don’t feel like it you build character And the work done here gives you strength to do more good things in a virtuous circle.

Calvin and Hobbes build character

They also mention that the more tidy our environment, the more self control we have. In the study they quote you can be offered some money now, or more money in a week. People in tidier surroundings are more likely  to choose to wait a week.  This is funny as Gretchen Rubin studied the effect of clutter on happiness, pointing out that clutter is all over the popular press (blogs) but is not studied much, yet keeping clutter under control is an essential, foundation, habit so around 2011 the science caught up.

It might seem really obvious but I’ve also realised that reading about something, helps you think more focusedly on that subject. So while I was reading stuffocation, I decluttered (even thought the book is only partly about that) and while I was reading Willpower, I was keeping better habits. This suggests that constantly reading different books on the same subject can be useful at practising that subject, even if the books are not adding any new information. Even though I’ve decluttered reasonably well (though not as well as if Marie Kendo really came round to my house to say are you sure that brings joy to your life), it seems that reading a decluttering book every quarter would be a good way to inspire you to keep on top of things. Finally an excuse to get more of these books.

The final sentence is to point out (despite the Calvin and Hobbes strip) that I don’t think it is at all necessary to do pointless tasks to build willpower. In life and in the world, there are enough useful tasks that need doing, and helpful habits that can be built up, there is no need to build character just for building characters sake. Build character by building a habit of something useful and worthwhile (writing blogs?).

Why do I feel like London is built by the renters for the investors?

The title is inspired by my feelings when walking through the new bits of Kings Cross between York Way and Caledonian road. Glossy but anodyne buildings renovated at a high cost by investors to rent at a high price, which results in £7 beers (those high rents aren’t magiced out of nowhere). In a perfect world the area would have been built up by the business owner, making profits out of the turnover of the busines and investing it in better buildings. (I don’t know if that’s what happened, that’s just how it looks).

This is something I thought of after going to the London Fairness Commission event, Is London a Fair City at Guildhall this evening. The debate is ultimately derived from the ideas in the book The Spirit Level, Why More Equal Societies Almost Always Do Better.

There were a number of interesting ideas. The London Bridge Trust maintains five bridges but has so much money they have widened their charitable remit (but they still maintain the bridges). Even though housing was supposed to be  the third item it kept bleeding through to earlier items.

Inequality has gotten better since 1915, so we should stop making a fuss. Even though it got better because of changes after the wars that have been going backwards.

If rich people pay more tax we should consider that job done, and not worry about why they have so much money to pay more tax with. It would also help if you clarify whether they pay more in absolute numbers (yes) or a percentage of their income (not so much) This ties into an idea that wasn’t discussed. Everyone was very keen on a proper living wage. Businesses are not keen on this, otherwise they could voluntarily pay more. At the same time they pay low wages, they post profits. This is basically a choice we can make; should that money go to wages or profits. The thing is that wages, especially of poorer people, go straight into the economy as people buy stuff to improve their standard of living. While profits could theoretically go into the economy too, by being invested back in the business, in practise investment in the real economy has stagnated over the last 30 years and profits are more likely to go in to the financial markets. Therefore if businesses pay higher wages and post smaller profits, the economy will be better off (nef has done the analysis). And while you might worry about what spending on ‘stuff’ will do for the enviroment, if we bought leisure, or experiences, or services we can lighten our load on the environment (see Stuffocation, we can save the enviroment without needing the human race to suddenly become perfect).

The final question was a few votes, leading up to whether we should build in the green belt. A poll of the attendees showed a huge majority in favour of rent controls. I’m even a bit reluctant to mention that because the idea has been so thoroughly demonised that I’m afraid people will write off the whole debate as [left wing slur]. But I’m going to go ahead (wait I already went ahead). Almost nobody was in favour of freeing up planning control, probably because only the developers would profit and we are sick of loosing our best buildings (Waitrose in Holloway, I’m looking at you). Finally a few more people were in favour of building in the green belt and that is the craziest part. Why do we want to build in the middle of nowhere or zone 7, or wherever the green belt is, when we could build in zone 2, where the jobs are and the infrastructure already exists. Compare these two screen shots of Islington and Prenzlauerberg in Berlin (where I lived, three stops from Alexanderplatz), a pretty good bit of Berlin that is gentrified because everyone wants to live there.

Islington London Prenzlauerberg Berlin

And bear in mind most houses in Islington are three stories while every house in Berlin is five stories with handsome high ceilings all the way up. And interesting little shops and cafes everywhere, because they have the people to shop in them. I’m not saying there is an easy solution to this because I’m not sure building an extra house in the back of every garden will work and I don’t want to knock down handsome Victorian houses, and so many modern buildings are hideous, but, but, but, but, Zone 2 can fit more people in (Waitrose in Holloway, after knocking down a five storey building to build a two story one, I’m looking at you). So no to Greenbelt building, commuting never made anyone happier.